Canadian singer Celine Dion has turned her health struggles into a new documentary, I Am Celine Dion. The trailer, which dropped on May 23, gives a glimpse into the singer’s life with stiff person syndrome, a rare neurological disorder that has prevented her from performing over the last few years.
In the trailer, Dion reveals the impact the condition has had on her.
“My voice is the conductor of my life. I need my instrument. I have been diagnosed with a very rare neurological disorder, and I wasn’t ready to say anything before, but I’m ready now,” she tells viewers in the trailer.
“It’s not hard to do a show, you know? It’s hard to cancel a show,” she continues. “I’m working hard every day, but I have to admit, it’s been a struggle. I miss it so much. The people, I miss them.”
The full documentary will give fans a close-up look at her journey to perform again despite her illness and is slated to premiere on June 25.
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The story so far
Dion has shared some updates with fans about her health over the past year and a half. Here’s what we know about her diagnosis and previous health struggles.
Celine Dion was diagnosed with stiff person syndrome in December 2022. Stiff person syndrome is a rare neurological disorder that can cause stiffness and muscle spasms, and affect a person’s ability to move, speak or, as in her case, sing.
Dion was forced to cancel her Las Vegas residency due to health issues in 2021. She also had to cancel her Courage World Tour through 2024.
The singer says she’s been receiving vocal, physical, and athletic therapy for her stiff person syndrome five days a week.
She is, however, determined to perform again.
